Celebrating Rare Individuals

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Rare Diseases Affect 1 in 12 or Nearly 3 Million Canadians*

Although it should be an effortless act, breathing, for people with a rare lung disease like pulmonary fibrosis, can be a painful, challenging experience. Diagnosis is lagging and access to treatment varies across Canada in part due to lack of awareness and understanding of this disease.

Join us in raising awareness and funds to help advocate for more equitable access to diagnosis, treatment, support, and opportunity for people living with pulmonary fibrosis.

Despite challenges, patients show amazing resilience and courage. Watch patients tell their stories and learn more about pulmonary fibrosis in this Breathless for Change Documentary presented by CPFF.

*Rare Diseases Working Group Report

Pay Tribute to a Rare Individual

Make a donation to send a tribute or memorial card

Celebrating a rare individuala
Rare Disease Card
Rare as is true love.
Celebrating Rare courage
For a rare human
Remembering a rare individual
Celebrating grandparents

SHARE A STORY ABOUT A RARE INDIVIDUAL

The CPFF community has experienced the incredible strength of people living with pulmonary fibrosis. These rare individuals showcase hope despite the energy it takes to live life with this devastating disease.

If you know or knew someone living with PF we want to pay tribute to them. Share a photo and few sentences.

The History and Future of PF

DR. MARTIN KOLB ON A RARE DISEASE THAT CONSISTS OF MORE THAN 200 LUNG DISORDERS

Dr. Martin Kolb, Research Director, Firestone Institute for Respiratory Health, in Hamilton, is optimistic that within 10 years, researchers will find a way to halt the progression of pulmonary fibrosis. His pioneering work in idiopathic pulmonary fibrosis has quite literally changed, improved, and extended the lives of people living with this debilitating lung disease for which there is currently no cure. Learn more about the history, present state, and future of pulmonary fibrosis in his virtual academic presentation delivered January 25, 2022, where he was honoured with the 2021 Anne & Neil McArthur Research Award at St. Joseph’s Healthcare Hamilton

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