Join Dr. Meena Kalluri and ILD Nurse Catharine Carson as they discuss the often misunderstood topic of pulmonary fibrosis and palliative care. Palliative care can help improve patient’s quality of life and support patients and their families.
Dr. Meena Kalluri
Dr. Kalluri kicks off the session with a compelling statement that sets the tone for this topic: “Live as well as you can. For as long as you can.” She then clarifies what palliative care is, describes the palliative care needs of PF patients and caregivers, identifies when you need palliative care, describes her approach to integrated palliative care in her ILD clinics and its impact.
Dr. Kalluri is an Associate Professor of Medicine at the University of Alberta, Edmonton, Canada. She is the founder and director of the Multidisciplinary Collaborative ILD clinic at the University of Alberta. She developed a patient-centric approach to outpatient care with an early-integrated palliative approach intended to improve health-related quality of life and death in advanced fibrotic lung diseases like IPF. The emphasis is on identifying patients’ needs, integrating symptoms management, and ACP (advance care planning) with routine disease management. Her team has developed innovative strategies to self-management support, engage patients and their families in shared decision-making, and promote patient-centric goals. Her clinical program received an innovation award from the Department of Medicine, University of Alberta (2019); this approach was highlighted in the provincial newsletter by Alberta Healthcare services(2018) and was recognized as an emerging innovation in Palliative and end of life care by the CanadianFoundation for Healthcare Improvement (2017)
Catharine Carson brings her ILD Nursing perspective to the table. She shares a few observations from a patient’s pulmonary fibrosis journey from diagnosis to progression, the role of a support network, and palliative care.
Catharine is an ILD Clinic Nurse with the Multidisciplinary ILD Clinic in Edmonton. She previously worked in Cardiovascular Nursing in acute care.