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Our Pulmonary Fibrosis Community
Abbie & Darren Clarke: Let’s Walk Back Across Canada For Pulmonary Fibrosis
Two weeks into global pulmonary fibrosis month and Canadians from coast to coast are showing their support for pulmonary fibrosis. We’ve walked 6,818 kilometers across Canada and now we’re walking back. Walk a little or a lot and donate now to help us find a cure. Tune in to Abbie and Darren Clarke as they share words of encouragement from Calgary, Alberta.
Greetings from Honourable Christine Elliott, Minister of Health
Honourable Christine Elliott, Minister of Health sends her greetings to Canadians for global pulmonary fibrosis month and explains why now more than ever, it’s important to support people living with this disease. Join CPFF’s Hope Breathes Here 2020 virtual events and let’s raise awareness, hope, and funds for people living with pulmonary fibrosis.
Dr. Alyson Wong, MD, Respirologist and CPFF Robert Davidson Fellowship Award Winner
Dr. Alyson Wong, MD shares how she has furthered her education and been able to make a difference, thanks to Canadian Pulmonary Fibrosis Foundation Robert Davidson Award, and why she chose to study Interstitial Lung Disease at the University of British Columbia.
Dr. Jolene Fisher, Respirologist: Working to Improve Healthcare for Pulmonary Fibrosis Patients
Dr. Jolene Fisher, MD, respirologist and clinical investigator with the University Health Network in Toronto, Ontario, shares what her fellowship at the University of Toronto taught her about patients with pulmonary fibrosis and their families and how her research aims to improve healthcare policy, healthcare delivery, and the individual health of patients suffering from pulmonary fibrosis.
Jacqui Bowick-Sandor Faces Life Post-transplant With Amazing Grace
Four years ago, double-lung transplant recipient Jacqui Bowick-Sandor ran a Facebook contest to name her two new lungs. The winner suggested Amazing and Grace. The names could also be used to describe this brave 55-year-old from Smith Falls, Ontario, as she faced life with IPF and then the ongoing challenges following her transplant.
Nik Stauskas, Canadian Basketball Player Speaks Out For Pulmonary Fibrosis
Canadian Basketball player Nik Stauskas shares his family connection to IPF, and how it’s motivated him to join the fight against pulmonary fibrosis. Join Nik and participate in CPFF’s Hope Breathes Here 2020 virtual events to help raise awareness, hope, and funds for people living with pulmonary fibrosis.
Dr. Tiffany Winestone, Respirologist: Reducing Wait Times for Pulmonary Fibrosis Patients in BC
Dr. Tiffany Winestone is a respirologist in Vancouver, British Columbia. Dr. Winestone has done 2 years of extra subspecialty training in the area of pulmonary fibrosis. Hear how Dr. Winestone is reducing wait times and providing better care for pulmonary fibrosis patients.
Dr. Daniel Marinescu, Respirologist: Pulmonary Fibrosis Research and Diagnosis
Dr. Daniel Marinescu is a respirologist in Vancouver, British Columbia. He received a clinical and research fellowship at St. Paul’s Hospital with the support of funding from the Canadian Pulmonary Fibrosis Foundation. When he first started his clinical training in respirology, he was taken aback by how devasting a diagnosis of pulmonary fibrosis is, often carrying with it a prognosis worse than many cancers. Hear why it is often difficult to make a diagnosis…
Official Acknowledgements for Pulmonary Fibrosis Month
Canadian Government Officials provide proclamations, declarations, and greetings for Pulmonary Fibrosis Month. Read Official Acknowledgements.
Greetings from Honourable John Horgan, Premier of British Columbia
Honourable John Horgan, Premier of British Columbia extends warm greetings to British Columbians participating in activities to mark Pulmonary Fibrosis Month in Canada throughout September. Read Premier Horgan's greeting
Jackie Clarke
Jackie Clarke, aunt to Abbie Clarke, a remarkable young woman and a driving force behind the first national CPFF Clarke Walk for Pulmonary Fibrosis, shares her family history with the disease and urges the public to do the right thing and protect our most vulnerable.
Greetings from Honourable Scott Moe, Premier of Saskatchewan
Honourable Scott Moe, Premier of Saskatchewan sends his greetings to Canadians for global pulmonary fibrosis month.
Greetings from Peter Bevan-Baker, Leader of PEI’s Green Party
Peter Bevan-Baker, Leader of the PEI Green Party, sends his greetings from the shores of Prince Edward Island.to Canadians for global pulmonary fibrosis month.
Greetings from Ryan Meili, Leader of the Saskatchewan NDP
Ryan Meili, Leader of the Saskatchewan NDP, sends his greetings to Canadians for global pulmonary fibrosis month.
Greetings from Wab Kinew, Leader of the Manitoba NDP
Wab Kinew, Leader of the Manitoba NDP, sends his greetings to Canadians for global pulmonary fibrosis month.
Rayyan Aldosary
Rayyan Aldosary was diagnosed at age one with pulmonary fibrosis and is currently on oxygen 24/7. Pulmonary fibrosis limits many of the activities he can participate in but it sure doesn’t limit his SPIRIT!
Greetings From Naheed Nenshi, Mayor of Calgary
Naheed Nenshi, Mayor of Calgary kicks off CPFF’s Hope Breathes Here 2020 virtual events with a video greeting.
John Dennis: I Self Advocate
I am inspired by the Clarke family to help raise awareness, funds and to log miles in the virtual walk across Canada. In 2016 my younger brother died of complications of PF and no one in the family at that time knew he had the disease except his wife. When I went to...
Robert Davidson
Heather and Robert Davidson had an opportunity to talk about an advance care plan when Robert underwent a lung transplant in 2009. “We knew there were risks with the surgery and rejection afterwards, but we chose to focus on a positive outcome, which we were fortunate...
Dr. Kerri Johannson
Respirologist Dr. Kerri Johannson at the University of Calgary has been advocating for years for improved funding and better access to oxygen therapy for her patients. “Some of my patients are basically suffocating, then I have to subject them to tests to prove they...
Melissa Sulpher
Melissa Sulpher, 38 years old, is not your typical person living with pulmonary fibrosis. Most are diagnosed, after several medical consultations, when they are in their 60s. Melissa’s case took quite some time to pin down, especially because of her age. Pregnant…
Barbara Barr
Like too many others, Barbara Barr-Haylock’s convoluted route to a diagnosis of IPF took several years. After three lung infections in five years, and visits to a cardiologist, a gastroentologist and a local respirologist, who told her she had “sensitive lungs,” an...
#HopeBreathesHere
During the month of September, when you are sharing photos and videos on Instagram or Twitter, simply type the hashtag #hopebreatheshere in your post. If your post is approved, it will appear on the Hope Breathes Here Community wall on the home page of this website within 3-4 business days.