My husband Leo was diagnosed with IPF in 2014. His lovely mum Louisa was diagnosed in 2007 with IPF and died in 2015. Our family like so many , know too well the reality of this disease. We appreciate the work that the CPFF has been doing to build the knowledge, research and expertise which is improving and prolonging the lives of so many .
In 2019 , thanks to the generosity of a donor family, Leo was gifted with the opportunity for life beyond IPF through a transplant for which we are eternally grateful .
Leo has faced many challenges navigating his post transplant reality. His resilience, eternal optimism and adventurous spirit is an inspiration to me and to our sons. You teach us how to live life to the max – you are our superhero and we love you beyond words ????